PDF ISARIC COVID19 RAPID Data Entry Guide - media.tghn.org To add a participant, click on the Add Participant icon. REDCap provides user-friendly web-based case report forms, real-time data entry validation (e.g. • The Participant Identifier may be the participant's name, an ID number, or whatever you would like. Custom Participant Sources require a unique identifier. Participant ID) because it will be used by REDCap as a key variable linking forms for a particular record. Data must be entered into it by a REDCap user logged into their account. The REDCap Mobile App is typically . Instrument is accessed through a URL. PDF REDCap - Automated Survey Invitations Option 1: Using the ... In addition to building an instrument using Online Designer, instruments can be built or edited in a Data Dictionary, then uploaded into REDCap. MyCap is an application installed on a participant's mobile device so the participants can complete data collection instruments, surveys, and other tasks remotely and over a period of time. data/responses. questions or participant identifier is enabled Identifiable as records linked to particular emails Potentially accessible by anyone multiple times . If you enable this feature, the survey is no longer considered anonymous. REDCap (Research Electronic Data . If the Participant List > Participant Identifier field is not used, the project administrators are not privy to this information. Accessible • web-based access (on and off campus) • access for multi-site collaborations Customizable 3. The first variable on the first form should be the record identifier (e.g. View the link in the setting for . As you are entering emails, you can add an identifier behind the email address using a comma as the separator. Below are three (3) options. for data types and range checks), audit trails, and the ability to set up a calendar to schedule and track critical study events such as blood-draws, participant visits, etc. Remember REDCap automatically assigns a unique record identifier when you create a new record. the set of information for a unique participant or subject. ), its purpose as a unique identifier must remain the same. REDCap will alert you and ask you to confirm that you do want to enable the participant identifier. Alternatively, the REDCap Mobile App is primarily used when an internet connection is unavailable or unstable. • Note: If you want to enable the Participant Identifier option, click on 'enable' before entering the email addresses. One record may contain many instruments Record ID -A unique identifier for each record in a project. for data entry for a new participant. To add a participant, click on the Add Participant icon. REDCap is a great option for Penn Medicine clinical research teams to build and manage online surveys and databases. For example: ctsiredcap@wakehealth.edu, REDCap Admin appropriate. This training builds on the basics and fundamentals covered in the "Managing Clinical Data using REDCap" course (Knowledge Link Course ID: UP.40009.ITEM.HSRWS100) . Due to previous REDCap feature limitations, the following approaches were used: (1) Create one huge instrument and a lot of branching logic. REDCap allows for personally identifiable information to be automatically removed from reports and exported data. REDCap Messenger is a chat application that supports one-on-one direct messages and group conversations, as well as project-linking, document and image sharing. It is also possible to identify an individual's survey answers by providing an Identifier for each participant. You can look it up using the REDCap help. Demographics is normally the first form, but this is not required. Instrument is accessed through a URL. REDCap uses the US HIPAA model to list what are likely to be personally identifying data. REDCap Messenger This is a communication platform is built directly into REDCap, allowing users to communicate easily, efficiently, and securely. The Participant Identification Number (PIN) 8. • REDCap/REDCap Admins have access to the key to the code. This is the most common method when you need to know who has responded so far and who hasn't. Before recruitment began, each patient's MRN was encrypted using TDEA and stored in REDCap in a crosswalk table alongside the unencrypted MRN . Record ID - A unique identifier for each record in a . Then click "Add participants" at the bottom of the pop-up box This is a manual process - cannot use with automated email list Adding a New Participant Record -Step 1 7. The first field in REDCap is called record_id, you could only rename this field and use it as your unique number. Accessing Your Project 6. You can add identifiers for each participant by enabling the 'Participant Identifier' column 3. After you click on "Add participants", enter your participant emails and identifiers in the pop-up box 4. unique identifier and the redcap_survey_identifier? . Developed as a tool to help researchers collect and manage data effectively and responsibly. The redcap_survey_identifier is the identifier defined for surveys when utilizing the Participant Email Contact List and sending survey invitations from the system. SPRINT-SARI Data Entry User Guide 23 2 1 "Honest Broker" = Coded Participant List • "Behind the scenes" link • Information is provided to investigators in such a manner that it would not be reasonably possible for the investigator or others to identify the corresponding patients-subjects directly or indirectly. The Record ID belongs to the participant, so all forms for a participant will have the same Record ID. There is no need to repeat the record identifier in each form. Future steps include working with Duke investigators to fine tune the participant survey and identify study teams that will pilot the REDCap platform. If you would like to use a Participant Identifier, you must Enable this before you add your participants. Select "Add/Edit Records" to create a new record using the patient's PETAL ID 2. Send the survey invitation from the 'Participant List' section or by defining an automated invitation. exporting the PDF, or if a survey participant is exporting the PDF of their own responses, it should not display the Participant Identifier inside the PDF. Web-based software used to create and manage research databases and participant surveys. Setting Up the Randomization Module in REDCap - How-To Guide REDCAP Randomization Module Randomization is a process that assigns participants/subjects by chance (rather than by choice) into specific groups, typically for clinical research and clinical trials. What is REDCap? Completing the Terms of Submission (ToS) 11.Completing the ToS-Electronic Signature 12. • If the first instrument is a data entry form, create a text field with . Items with only an id number are records (such as items 5 and 7 in the above list). REDCap Basic Functionality Information about using participant identifiers Created by Sherrill, Dawn, last modified by Somers, Maxx (Maxx) on 02/15/2018 When sending surveys, user can utilize the Participant List to track which subjects have responded while maintaining anonymous survey data collection. Research Intelligence & Data Infrastructure has a REDCap installation that is available for use at no cost to all University of Miami employees. Advantages: Survey responses are anonymous (can also be a disadvantage). Survey participant list: Build a list of email contacts, create custom email invitations, and track who responds. V. Background about REDCap Background REDCap (Research Electronic Data Capture) is a secure, web-based application designed REDCap assigns a Case Identifier which will be used for all additional instruments. Electronic-Consent (e-Consent) is a platform for consenting research participants using a computer-based consent form rather than traditional paper documentation. REDCap has built-in features that support pragmatic, internet-based studies, and REDCap is flexible enough to allow creative solutions for specific trials. MyCap is an application installed on a participant's mobile device so the participants can complete data collection instruments, surveys, and other tasks remotely and over a period of time. Using a List of Participants in REDCap ‐‐‐Accessed through the "Manage Survey Participants" link ‐‐‐REDCap will track the progress of responses and automatically send reminders ‐‐‐Participants are anonymous by default but a Participant Identifier can be set up in cases where Intended to be filled out by participants (non-REDCap users). For example: ctsiredcap@wakehealth.edu, REDCap Admin (viewing method) Record - A record contains all the information for a unique participant. Aim 1: Develop tools and infrastructure To execute the first Aim , the project team will Develop integrated tools incorporating the validated RPPS-Short in the REDCap platform with external modules to support project and program dashboards and analytics. • Printable to give to participant • Enters visit dates on a study calendar in REDCap, viewable by all users identifier fields AND all open text fields (could contain names, phone numbers, . REDCap Data Entry User's Guide & Reference Manual Page 3 Data Collection Types There are two types of data collection that a project can have: Classic - Each form is used once for each participant. Adding a New Participant Record -Step 3 10. . add the list of email addresses to the participant list. REDCap will alert you and ask you to confirm that you do want to enable the participant identifier. The Participant Identifier field links the email address to the survey responses. REDCap mobile app. The redcap_survey_identifier is the identifier defined for surveys when utilizing the Participant Email Contact List and sending survey invitations from the system. What is e -Consent? • Note: If you want to enable the Participant Identifier option, click on 'enable' before entering the email addresses. REDCap is not an "open system." Cases are not identified except through a participant identification number supplied by the agency providing direct services so that information can be used for their purposes. The "Participant Identifier" is an optional field you can use to identify individual survey responses so that the participant doesn't have to enter any identifying information . The REDCap system will rely on the Study ID automatically created in the tracking system as the unique participant identifier. REDCap - Survey Participant List If responses do not need to be anonymous, you may use the participant list to capture email addresses to send participants multiple surveys and have the data linked. The figure 2 below shows this relation: Figure 2: All forms for a participant have the same Record ID Managing participant activities in a research study is an important aspect of quality study conduct. Logging in to REDCap 5. You can distinguish between responses and records in these lists. The following list provides a starting point but will vary on a case-by-case basis. 2: Advanced Piping & Logic with Imported Data. This indicates the unique record/participant identifier, and must be preserved. (Ticket #95435) • Bug fix: When importing certain PROMIS instruments or batteries from the REDCap Shared The "Participant Identifier" is an optional field you can use to identify individual survey responses so that the participant doesn't have to enter any identifying information . The completion of a public survey will create a new record in your REDCap project (hence why it is the first instrument in your project). All REDCap data is securely hosted by the University of Miami's IT Department. No login required. In other words, it is not a "Smart Variable", as defined by REDCap. REDCap divides the whole study into arms, which are groups of events which may be common to all participants or specific to a subset of participants. Customize Unique Participant Identifier However, whatever you decide to call it ("Participant ID," "Study ID," etc. For that reason, an identifier crosswalk is necessary. Activities that should be managed and documented, both electronically and on paper, start at the time of identification and recruitment, through consent and study visits, and all the way up until the time each participant is paid for their participation. Survey - An instrument in which a research participant can enter data or answer questions without a REDCap account. In some projects, you may have more than this planned out already, while others may still be defining the basics. Web-based - Enter data or build your database . What is a Participant List? Option 1: The project's first instrument is a survey and you want to use the public URL to capture email addresses for In REDCap, data can be collected through a form or through a survey. REDCap offers a digital method to acquire and store participant consent through a new e-Consent Framework and PDF Auto-Archiver. ), its purpose as a unique identifier must remain the same. S L I D E 3 What are the advantages of REDCap? However, whatever you decide to call it ("Participant ID," "Study ID," etc. All REDCap data is securely hosted by the University of Miami's IT Department. Web-based - Enter data or build your database . Multi-site access: REDCap can be used from multiple sites and institutions. 4. This user manual explains how to use the REDCap System. The default variable name is "Study_ID". The survey is completed after a participant clicks on a survey link posted somewhere online or sent to them via email. •A useful oddity of REDCap •A way to define a list of potential participants to invite to a survey •But, the participant list data is kept separate from the actual data in the project •The participant list data is only used for inviting people to take a survey Protecting PHI in REDCap is part of the larger picture of protecting sensitive participant information The IRB's job is to protect patients and their information Adhering to your IRB protocol is first and foremost for protecting your patient's data All, some, or none of the material here maybe relevant to your particular project Open the "PETAL ORCHID Consent" REDCap database b. 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